National Audit of Breast Cancer in Older Patients: Annual Reports

National Audit of Breast Cancer in Older Patients: Annual Report 2021
HQIP 12 August 2021

• Based on data from women aged 50+ years diagnosed with breast cancer between January 2019 and 31 July 2020, this report reviews diagnoses and treatment patterns across England and Wales, taking the early months of the pandemic into consideration. Outcomes among women diagnosed between January 2014 and December 2018 were also examined within the report.

National Audit of Breast Cancer in Older Patients – 2020 Annual Report
HQIP 9 July 2020

• A report of the process and outcomes of care for 185,648 patients, aged 50 years and over, diagnosed with breast cancer between 1 January 2014 and 31 December 2018 in England and Wales. Information from the English Cancer Patient Experience Survey (CPES), completed by patients diagnosed in England in 2015 to 2018 is included.

National Audit of Breast Cancer in Older Patients: 2019 Annual Report
HQIP 9 May 2019

• A report of the process and outcomes of care for 147,162 patients, diagnosed with breast cancer between 1st January 2014 and 31st December 2017 in England and Wales. This is the first report using data linked from the English Cancer Patient Experience Survey (CPES) to the NABCOP patient-level data.

Does prevention-focused integration lead to the triple aim? An evaluation of two new care models in England

Does prevention-focused integration lead to the triple aim? An evaluation of two new care models in England
Journal of Health Services Research & Policy 27 October 2020 https://doi.org/10.1177/1355819620963500

• This research examined the effectiveness of two integrated care models (Salford Together and South Somerset Symphony Programme) in terms of patient experience, generic health status (EQ-5D); and total costs of secondary care. 
• Both intervention sites showed an increase in total costs of secondary care (approximately £74 per registered patient per year in Salford, £45 in South Somerset) and cost per user of secondary care (£130–138 per person per year). There were no statistically significant effects on health status or patient experience of care. There was a more apparent short-term negative effect on measured outcomes in South Somerset, in terms of increased costs and avoidable emergency admissions, but these reduced over time.

Reducing wait time for administration of systemic anticancer treatment (SACT) in a hospital outpatient facility

Reducing wait time for administration of systemic anticancer treatment (SACT) in a hospital outpatient facility
BMJ Open Quality 2020;9:e000904. doi: 10.1136/bmjoq-2019-000904

• LEAN principles were used to redesign a systemic anticancer treatment service [Scotland] resulting in reduced average appointment time and in positive patient experience.

Patient experiences of the urgent cancer referral pathway-Can the NHS do better?

Patient experiences of the urgent cancer referral pathway-Can the NHS do better? Semi-structured interviews with patients with upper gastrointestinal cancer.
Health Expect. 2020 Sep 28. doi: 10.1111/hex.13136.

• Interviews with 20 patients who were referred through the 2WW GP referral route highlighted four themes - organization of care; diagnosis; support; and views and expectations of the NHS. Researchers conclude that the NHS needs to improve communication and streamline pathways. Future cancer pathways also need to be designed to support shared decision making, be truly person‐centred and informed by patient experience.

The impact of COVID-19 on cancer patients in the UK

The impact of COVID-19 on cancer patients in the UK: Cancer Research UK Cancer Patient Experience Survey 2020
Cancer Research UK 28 July 2020

• Survey of 1,868 cancer patients (1st to 28th May) to understand the impact of COVID-19 on cancer patients’ testing, treatment and care, day-to-day lives and wellbeing, and support for government policies.

National Bowel Cancer Audit Short Report

National Bowel Cancer Audit Short Report
HQIP 11 June 2020

Patient Reported Experience Measures
The aim of this short report was to link the CPES responses to the National Bowel Cancer Audit (NBOCA) data to explore the feasibility of reporting PREMs at hospital trust level in a cohort of newly diagnosed colorectal cancer patients admitted to hospital in England for initial treatment of their cancer.

Cancer registry data
This report aims to understand the reasons for the differences in cases captured in the two datasets National Cancer Registration and Analysis Service (NCRAS) and the National Bowel Cancer Audit (NBOCA) data. And to determine whether NCRAS data can be routinely linked to audit data to improve case ascertainment in audit reporting.

Cost-effectiveness Applications of Patient-reported Outcome Measures (PROMs) in Spine Surgery.

Cost-effectiveness Applications of Patient-reported Outcome Measures (PROMs) in Spine Surgery.
Clin Spine Surg. 2020;33(4):140-145. doi:10.1097/BSD.0000000000000982

• On the basis of the health-related quality of life outcomes, the cost-effectiveness of various spine surgeries can be determined, such as cervical fusions, lumbar fusions, microdiscectomies.

Abstract

National Cancer Patient Experience Survey 2018 reports

National Cancer Patient Experience Survey 2018 reports
NCPES 4th September 2019

• Survey reports by CCG, Cancer Alliance, Trusts and national data.

The causal effect of hospital volume on health gains from hip replacement surgery

The causal effect of hospital volume on health gains from hip replacement surgery
Centre for Health Economics 20 August 2019

• This study investigates the causal effect of hospital volume on the health gains of patients receiving a primary planned hip replacement procedure in the English NHS in 2015/16. It sought to test for the presence of economies of scale in health outcomes and concludes that hospital volume does not have a causal impact on patient-reported health outcomes for planned hip replacement.

Comparing modular and personal service delivery in specialised outpatient care: A survey of haematology and oncology patient preferences

Comparing modular and personal service delivery in specialised outpatient care: A survey of haematology and oncology patient preferences
Health Services Management Research Volume: 32 issue: 4, page(s): 209-217, 12 August 2019 https://doi.org/10.1177/0951484819868681

• This study compares preferences of oncology patients treated by named nurses in a traditional specialty-focused day hospital and haematology patients treated without named nurses in a modularised day hospital. 
• The findings suggests that patients can be satisfied with outpatient care with or without named nurses. However, as several factors affect patient satisfaction and experience, more in-depth research is needed to understand how modularisation and patient preferences may be linked.

Abstract

National Prostate Cancer Audit – Patient Summary 2018

National Prostate Cancer Audit – Patient Summary 2018
HQIP 15 May 2019

• The NPCA collects clinical information about the treatment and outcomes (what happens after treatment) of all patients newly diagnosed with prostate cancer in England and Wales. This includes information collected from hospital records and directly from patients diagnosed with prostate cancer.

Pancreatic Cancer National patient survey

Pancreatic Cancer National patient survey 
Pancreatic Cancer UK, March 2019

• A survey of the care experiences and support needs of 274 people with pancreatic cancer has found that 49% of respondents had one or more unmet support needs considered either high or moderate in severity.
• Half of patients with deadliest common cancer have unmet support needs, first ever UK survey reveals Picker 25 March 2019

Updated MDC Resources

Multidisciplinary Diagnostic Centre (MDC) resources

• The Cancer Research UK ACE Programme has released new resources to support local development and implementation of MDC-based pathways for patients with non-specific but concerning symptoms. 
• Resources include 
• Core data items and metrics list
• Planning guide for MDCs
• MDC patient experience evaluation report
• MDC animation
• MDC planning toolkit
• MDC emerging models

Cancer Patient Experience Survey local results for 2017

Cancer Patient Experience Survey 

• Local reports by CCG and Trust are  now available for 2017.

National Bowel Cancer Audit: The feasibility of reporting patient outcome measures…

National Bowel Cancer Audit: The feasibility of reporting patient outcome measures…

HQIP 9 August 2018

• A feasibility study linking the NHS England National Cancer PROM’s to the National Bowel Cancer Audit (NBOCA) data to establish the feasibility of the PROMs as part of the national clinical audit. This was assessed according to:
• i) the characteristics of responders compared to all eligible patients
• ii) the representativeness of the responders at different points along their pathway from diagnosis
• iii) hospital trust variation in response rate, and
• iv) the validity of the measures in comparison to NBOCA measures.

Activity levels and return to work after revision total hip and knee arthroplasty in patients under 65 years of age.

Activity levels and return to work after revision total hip and knee arthroplasty in patients under 65 years of age.
Bone Joint J 2018;100-B:1043–53. August 2018

• Records of 55 patients aged ≤ 65 years after revision total hip arthroplasty indicated that only 16% of those over 50 years old return to work. Fewer patients return to work after early revision and none after revision for dislocation.
• Records of 30 patients after revision total knee arthroplasty indicated that patients rarely return to work: none return to heavy or moderate manual work.
• Study site: Edinburgh Infirmary

Patient and Public Voice assurance group for Specialised Commissioning

Patient and Public Voice assurance group for Specialised Commissioning terms of reference
NHS England 30 July 2018

• These terms of reference outlines the roles and responsibilities of members of the Patient and Public Voice Assurance Group (PPV AG), as well as information about accountability, governance and voting arrangements.

Can nurse specialist working practices reduce the burdens of lung cancer?

Can nurse specialist working practices reduce the burdens of lung cancer?
University of Nottingham, 4 July 2018

• A new study has found that patients with lung cancer experience significantly better outcomes in terms of life expectancy, avoiding unnecessary hospital admissions and managing the effects of treatment when cared for by specialist lung cancer nurses.
• The research was based on anonymised patient healthcare records available from PHE and a nationwide survey of lung cancer nurse specialists (LCNS), analysing more than 100,000 people with lung cancer and more than 200 nurses across England.
• The research carried out by the University of Nottingham and London South Bank University, was presented at the National Cancer Registration and Analysis Service (NCRAS) conference on 21 June 2018.

The impact of relocation of chronic pain service from hospital setting to community centre on patient experience: a single-centre audit

The impact of relocation of chronic pain service from hospital setting to community centre on patient experience
British Journal of Pain v12(2), pp. 122 - 131 20 March 2018, https://doi.org/10.1177/2049463718759782

• Examination of patient experience of relocation of Lothian Chronic Pain Service (Edinburgh, Scotland)  from a university teaching hospital to a community setting found no clear evidence that Patient-Reported Experience Measure was negatively affected by the move. 

Abstract

Vanguards are improving patient experience

Improving the experiences of people who use services
NHS Providers 7 March 2018
Sharing learning around patient experience from vanguards including:

• Specialist care closer to home - integrated neurology nurse at the Neuro Network vanguard at Walton Centre, Liverpool.
• Reducing the need to travel - epilepsy specialist nurse providing support and practical care to children treated at Evelina London Children's Hospital closer to home.