DHSC 9 January 2021
- The UK Rare Diseases Framework lists the priorities and underlying strategic themes that detail how the UK will address the challenges faced by those living with rare diseases.
- The UK Rare Diseases Framework outlines 4 high-level priorities for rare diseases in the UK over the next 5 years:
- helping patients get a final diagnosis faster
- increasing awareness of rare diseases among healthcare professionals
- better coordination of care
- improving access to specialist care, treatments and drugs
