Dev Med Child Neurol, 61 (10), 1202-1207. Oct 2019
- From 1972 to 2017, a cohort of 117 (born 1963–1971) survivors with spina bifida and/or carers was surveyed approximately every 5 years by clinical examination and/or postal questionnaire/ telephone interview. Analysis showed that:
- By age 50 years, the percentage of patients who could walk more than 50m had declined to 27%.
- By age 50 years, the percentage living independently had doubled to over 50%.
- Survivors without a history of raised intracranial pressure or cerebrospinal fluid shunt revision are more likely to live independently.
