27 February 2019

UK strategy for rare diseases: 2019 update

UK strategy for rare diseases: 2019 update to the implementation plan for England
DHSC 27 February 2019
  • The UK strategy for rare diseases: implementation plan for England was published in January 2018.
  • This update on the strategy’s progress covers 5 main areas:
    • empowering those affected by rare diseases
    • identifying and preventing rare diseases
    • diagnosis and early intervention
    • coordination of care
    • the role of research
  • It also sets out the actions that DHSC and partner organisations will take over the next year to implement the commitments of the strategy.