DHSC 27 February 2019
- The UK strategy for rare diseases: implementation plan for England was published in January 2018.
- This update on the strategy’s progress covers 5 main areas:
- empowering those affected by rare diseases
- identifying and preventing rare diseases
- diagnosis and early intervention
- coordination of care
- the role of research
- It also sets out the actions that DHSC and partner organisations will take over the next year to implement the commitments of the strategy.